We are a group of people whose lives have been touched by Poland Syndrome. We offer support, advice and information on the condition.
Our primary objective is to provide a network of support for anyone who finds their life affected by Poland Syndrome. Whether you have Poland Syndrome yourself or are a parent, family member or friend of someone who has Poland Syndrome, we strongly believe that everyone has something to offer.
Poland Syndrome is a sequence of one-sided malformations present from birth. The disorder is primarily characterised by a deficiency in the development of the pectoral muscles in the chest, with patients often, but not always, also displaying hand and finger defects.
The condition and its associated features are extremely variable from case to case. This results in minor occurrences often not being apparent from birth or in some circumstances even until puberty, when asymmetrical growth makes the condition more evident.
Through the website, Facebook and the helpline, we are always available to give support and advice to parents, fellow sufferers and anyone whose life has been affected by Poland Syndrome, so that nobody has to suffer alone.
Please get in touch and let us know your story.
