We are a group of people whose lives have all been touched by Poland Syndrome. We offer support, advice and information on the condition.
The Poland Syndrome Support Group is a UK based group offering support, advice and information to anyone with Poland Syndrome and their families.
Our primary objective is to provide a network of support for anyone who finds their life affected by Poland Syndrome. Whether you have Poland Syndrome yourself or are a parent, family member or friend of someone who has Poland Syndrome, we strongly believe that everyone has something to offer.
While the group is becoming more established, the committee is working hard to promote awareness of Poland Syndrome and the existence of the group. We are aiming to generate a comprehensive UK based website which will include information for new members, Poland Syndrome stories, contacts and advice, as well as a directory of the group’s members. This current website is just the beginning – we will be adding lots of new content over the coming months!
In addition to promotion, the committee members are hoping to find a patron for the group and are actively involved in fundraising. Any funds coming into the group are primarily used to subsidise events for group members.
Please feel free to get in touch with us if you have any questions or suggestions with regards to the group. We’d love to hear from you.