This website was set up with the simple goal of creating a strong network of fellow sufferers and parents of children with Poland Syndrome. We already have a great community of people on our Facebook group so please feel free to head on over join our family.

Perhaps you would like to speak to someone directly. If so, you contact us using the helpline number at the top of the page. There is always someone there who is more than willing to have and chat and offer friendly support and advice.

Please also check out Family Days page where we strive to offer opportunities for members of our community to meet up and share a day of fun and lasting memories.