Our primary objective is to provide a network of support for anyone who finds their life affected by Poland Syndrome.
There are several ways that you can get in touch if you feel you need some support or advice. You can contact us via this website, using our Facebook page or by calling the helpline at the top of this page. As fellow sufferers of Poland Syndrome, we all have plenty of experience, and some great advice, for dealing with the certain obstacles that life throws at us.
As Poland Syndrome is so rare, it can sometimes feel like there is nobody that can relate to the everyday struggles that sufferers have to deal with. That is why we set this website up, so that we can build a strong network of fellow sufferers and parents of children with Poland Syndrome, so that no-one ever has to feel alone.
So, if you have Poland Syndrome or are a parent of a child with Poland Syndrome, please do get in touch. We would love to hear your story and we would love to be able to support you on your journey.